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This department is offering a grant to enhance long-term follow-up for newborn screening patients in primary care practices. The grant aims to investigate the feasibility of implementing long-term follow-up responsibilities outlined in a 2011 report by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children. Successful applicants will link primary care practices to state newborn screening follow-up programs, assess the feasibility of establishing long-term follow-up in primary care settings, and develop work plans using existing resources. The initiative targets improving care coordination, treatment outcomes, quality improvement, and knowledge discovery for infants identified with heritable disorders. Application deadline is Feb 19, 2013.
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Opportunity ID: 212455
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General Information
| Document Type:: | Grants Notice |
| Funding Opportunity Number:: | HRSA-13-213 |
| Funding Opportunity Title:: | Integrating Newborn Screening: Long-term Follow-up into Primary Care Practices |
| Opportunity Category:: | Discretionary |
| Opportunity Category Explanation:: | |
| Funding Instrument Type:: | |
| Category of Funding Activity:: | Health |
| Category Explanation:: | |
| Expected Number of Awards:: | 3 |
| Assistance Listings Number(s):: | 93.110 — Maternal and Child Health Federal Consolidated Programs |
| Cost Sharing or Matching Requirement:: | No |
| Version:: | Synopsis 1 |
| Posted Date:: | Dec 20, 2012 |
| Last Updated Date:: | |
| Original Closing Date for Applications:: | Feb 19, 2013 |
| Current Closing Date for Applications:: | Feb 19, 2013 |
| Archive Date:: | Apr 20, 2013 |
| Estimated Total Program Funding:: | |
| Award Ceiling:: | $110,000 |
| Award Floor:: | $0 |
Eligibility
| Eligible Applicants:: | Others (see text field entitled “Additional Information on Eligibility” for clarification) |
| Additional Information on Eligibility:: | Eligible applicants include a state or a political subdivision of a state; a consortium of two or more states or political subdivisions of states; a territory; a health facility or program operated by or pursuant to a contract with or grant from the India |
Additional Information
| Agency Name:: | Health Resources and Services Administration |
| Description:: | This funding opportunity announcement solicits applications for the demonstration program Integrating Newborn Screening long term follow-up into primary care provider practices Applicants will investigate the feasibility of implementing the long-term follow-up responsibilities outlined in the 2011 report, What Questions Should Newborn Screening Long-term Follow-up Be Able to Answer? A statement of the US Secretary of Health and Human Services Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) and will utilize grantee networks to contribute to the long-term follow-up information collection on patients identified by newborn screening.
The Secretarys Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) provides advice to the Secretary on reducing the morbidity and mortality associated with heritable disorders, with particular emphasis on newborn screening (NBS). Efforts to systematically evaluate health outcomes, and impact, beyond long-term survival, with a few exceptions, are just beginning. To facilitate these nascent efforts, the SACHDNC reviewed the goals and expectations of the type of long-term follow-up that is required to ensure best outcomes and improve access to care for patients identified through newborn screening. The key questions follow the central components of long-term follow-up – care coordination; evidence-based treatment; continuous quality improvement, and new knowledge discovery-and are framed from the perspectives of the state and nation, primary and specialty healthcare providers, and the impacted families. This initiative will use the overarching questions outlined in the report for primary care practices to demonstrate the feasibility of accomplishing those roles by answering the questions outlined for primary care: Are children/adolescents receiving coordinated care through a medical home? Applicants are strongly encourage to leverage existing resources such as NICHDs Newborn Screening Translational Research Networks (NBSTRN) long-term follow-up data base and common data elements or to dovetail with established newborn screening long-term follow-up projects. Appropriate informed consent and IRB procedures should be followed in all situations. Answers to these questions will provide data for the feasibility of accomplishing long-term follow-up in the primary care setting. These overarching questions will be used to demonstrate the abilities of primary care practices to provide accurate and ongoing information on patients identified with heritable disorders on newborn screening to public health departments and long-term follow-up programs. Successful applicants will: Demonstrate the capacity to link primary care practices to state newborn screening follow-up programs in a functional manner in order to facilitate seamless follow-up of infants identified with NBS conditions. The grantee will identify and begin collaborations with two or more primary care practices, that have at least one patient that has been identified through newborn screening and/or a long-term follow-up network (e.g., Community Health Centers; Federally Qualified Health Centers or other practice supported by the Bureau of Primary Health Care at HRSA to State newborn screening systems) The primary care practices and long term care follow up networks must have established communications and be working within an established Regional Collaborative through HRSAs Genetic Services grantee network. Demonstrate a plan for assessing the feasibility of establishing long-term follow-up in a primary care setting. Can the clinics working with the grantee answer the following questions: What number of children (combined and by specific disease) identified by the newborn screening program and enrolled in care have an individual health/care coordination plan that is updated at regular intervals? Develop a work plan that leverages existing resources. Appropriate informed consent and institutional review board (IRB) procedures should be followed in all situations. |
| Link to Additional Information:: | |
| Grantor Contact Information:: | If you have difficulty accessing the full announcement electronically, please contact: |
Version History
| Version | Modification Description | Updated Date |
|---|---|---|
| Synopsis 1 |
Package Status
Below are CLOSED Opportunity Package(s) no longer available for this Funding Opportunity:
Package No: 1
| Assistance Listings: | 93.110 |
| Competition ID: | 5487 |
| Competition Title: | Integrating Newborn Screening: Long-term Follow-up into Primary Care Practices |
| Opportunity Package ID: | PKG00157330 |
| Opening Date: | Dec 20, 2012 |
| Closing Date: | Feb 19, 2013 |
| Agency Contact Information:: | Christina M Turgel, BSN, RN-BC |
| Who Can Apply:: | Organization Applicants |
| mendatory_forms |
Application for Federal Assistance (SF-424) [V2.1] Attachments [V1.1] Project/Performance Site Location(s) [V1.4] Project Narrative Attachment Form [V1.1] Grants.gov Lobbying Form [V1.1] Budget Narrative Attachment Form [V1.1] Assurances for Non-Construction Programs (SF-424B) [V1.1] Budget Information for Non-Construction Programs (SF-424A) [V1.0] |
| optional_forms | Disclosure of Lobbying Activities (SF-LLL) [V1.1] |
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Packages
| Assistance Listings | Competition ID | Competition Title | Opportunity Package ID | Opening Date | Closing Date | Actions | Who Can Apply: | |
|---|---|---|---|---|---|---|---|---|
| 93.110 | 5487 | Integrating Newborn Screening: Long-term Follow-up into Primary Care Practices | PKG00157330 | Dec 20, 2012 | Feb 19, 2013 | View | Christina M Turgel, BSN, RN-BC | Organization Applicants |
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