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This grant aims to design and test a surveillance system targeting congenital and inherited conditions with low prevalence but high health and economic impact, focusing on conditions like spina bifida, muscular dystrophy, and fragile X syndrome. The developed prototype system may serve as a model for similar conditions, aiding in describing epidemiology, monitoring interventions, developing screening strategies, informing policies, and addressing disparities. The research seeks to enhance understanding, intervention, and health services for affected individuals and their families, ultimately improving public health outcomes. Closing date for applications is Mar 02, 2012.
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Opportunity ID: 136633
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General Information
| Document Type:: | Grants Notice |
| Funding Opportunity Number:: | RFA-DD-12-002 |
| Funding Opportunity Title:: | A Pilot Surveillance System for High Impact/Low Prevalence Congenital and Inherited Conditions |
| Opportunity Category:: | Discretionary |
| Opportunity Category Explanation:: | |
| Funding Instrument Type:: | |
| Category of Funding Activity:: | Health |
| Category Explanation:: | |
| Expected Number of Awards:: | 1 |
| Assistance Listings Number(s):: | 93.283 — Centers for Disease Control and Prevention_Investigations and Technical Assistance |
| Cost Sharing or Matching Requirement:: | No |
| Version:: | Synopsis 1 |
| Posted Date:: | Jan 04, 2012 |
| Last Updated Date:: | |
| Original Closing Date for Applications:: | Mar 02, 2012 |
| Current Closing Date for Applications:: | Mar 02, 2012 |
| Archive Date:: | Apr 01, 2012 |
| Estimated Total Program Funding:: | $ 800,000 |
| Award Ceiling:: | $400,000 |
| Award Floor:: | $0 |
Eligibility
| Eligible Applicants:: | Others (see text field entitled “Additional Information on Eligibility” for clarification) |
| Additional Information on Eligibility:: | Eligible Applicants
Eligible Organizations The following types of Higher Education Institutions are always encouraged to apply for CDC support as Public or Private Institutions of Higher Education: Nonprofits Other Than Institutions of Higher Education For- Profit Organizations Governments Other A Bona Fide Agent is an agency/organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application. If applying as a bona fide agent of a state or local government, a legal, binding agreement from the state or local government as documentation of the status is required. Attach with “Other Attachment Forms” when submitting via www.grants.gov. Non-domestic (non-U.S.) Entities (Foreign Organizations) are not eligible to apply. Foreign (non-U.S.) components of U.S. Organizations are not eligible. |
Additional Information
| Agency Name:: | Centers for Disease Control and Prevention – ERA |
| Description:: | The purpose of this research is to design and test the feasibility of a surveillance system for congenital and inherited conditions that have low prevalence but high health and economic impact in the U.S. population that will support description of this population across the lifespan. Initial design of this surveillance system will focus on three conditions which exemplify different types of disorders: e.g. spina bifida is an example of a neurological condition affecting mobility; muscular dystrophy is an example of a neuromuscular condition; and fragile X syndrome is an example of a condition affecting cognition and behavior. The project will develop a prototype surveillance system that, if found effective, can serve as a model for other low prevalence/high impact conditions. There is currently no system or integrated approach to identify and describe persons affected by these conditions, thus limiting opportunities to understand, intervene, and improve health services and public health outcomes for those people affected with these conditions and their families. A system focused on low prevalence/high impact conditions may assist public health practitioners, clinicians, and other groups to: describe the epidemiology and the features of secondary health conditions associated with these disorders; monitor the progress of public health interventions, develop screening strategies for the detection of new cases, inform policies aimed at improving the healthcare delivered to these patients, and address potential differences or disparities in the impact of these conditions on the population. In short, this research effort will explore how different systems and data sources may be used to improve health services and health outcomes among people affected with selected conditions and their relatives. |
| Link to Additional Information:: | |
| Grantor Contact Information:: | If you have difficulty accessing the full announcement electronically, please contact: |
Version History
| Version | Modification Description | Updated Date |
|---|---|---|
| Synopsis 1 |
Package Status
Below are CLOSED Opportunity Package(s) no longer available for this Funding Opportunity:
Package No: 1
| Assistance Listings: | 93.283 |
| Competition ID: | NCBDDD-R |
| Competition Title: | A Pilot Surveillance System for High Impact/Low Prevalence Congenital and Inherited Conditions |
| Opportunity Package ID: | PKG00090430 |
| Opening Date: | Jan 04, 2012 |
| Closing Date: | Mar 02, 2012 |
| Agency Contact Information:: | Centers for Disease Control and Prevention |
| Who Can Apply:: | Organization Applicants |
| mendatory_forms |
SF424 (R & R) [V1.2] Project/Performance Site Location(s) [V1.4] Research And Related Other Project Information [V1.3] Research And Related Senior/Key Person Profile (Expanded) [V1.2] Research & Related Budget [V1.1] PHS 398 Cover Page Supplement [V1.4] PHS 398 Research Plan [V1.3] PHS 398 Checklist [V1.3] |
| optional_forms |
R & R Subaward Budget Attachment(s) Form 5 YR 30 ATT [V1.2] PHS Cover Letter [V1.2] |
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Packages
| Assistance Listings | Competition ID | Competition Title | Opportunity Package ID | Opening Date | Closing Date | Actions | Who Can Apply: | |
|---|---|---|---|---|---|---|---|---|
| 93.283 | NCBDDD-R | A Pilot Surveillance System for High Impact/Low Prevalence Congenital and Inherited Conditions | PKG00090430 | Jan 04, 2012 | Mar 02, 2012 | View | Centers for Disease Control and Prevention | Organization Applicants |
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